OverComeACC.com



~Support Links~

Support Groups and Helpful Links

There is an ACC Community out there that has been traveling this road before you and

a
ccumulatively they have a wealth of knowledge to share and they do so willingly.

They can answer questions for you and share success stories as well as the hardships,

 enable-ling you to benefit from those that have come before you.

We feel that we are all in this together and sharing that makes this a much easier road to

travel! 

 This is a an ultra rare cancer that has us, the patients learning and acquiring knowledge

right along with the doctors.  We are learning together, and from each other, thus fellow

ACC patients can provide a newly diagnosed Adrenal Cortical Cancer patient with a wealth

of knowledge and information so as to hopefully allow you to become the very best

informed patient that you can be.

Be your own best advocate!

Knowledge is power!

Helpful links

www.adrenalcancer.org


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http://www.cancerprotocol.com/about.html
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http://www.sarcomacancer.org/index.php?page=adjunctive-treatment


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* Adrenocortical Carcinoma Web Site is a closed group for Adrenocortical Carcinoma patients, caregivers, physicians and researchers and requires permission to join.

Contact:

http://www.adrenocorticalcarcinoma.com   

* Owner of that Web Site and Closed Group  Richard B Beverlin Jr. has developed an emulsion of mitotane to help patients tolerate this drug and potentially get the mitotane into the system more effectively. He will make the emulsion available to patient's physicians (Warning: do not attempt to use the emulsion without expressed approval of your physician.)  You or your physican may contact Richard Beverlin to obtain a copy of the emulsion and background scientific information. Contact for all above:   beverlin@ix.netcom.com

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Mitotane

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000476


http://www.ncbi.nlm.nih.gov/pubmed/19574489


www.ncbi.nml.nih.gov/pubmed/10852456


http://jcem.endojournals.org/cgi/content/full/85/6/2234


http://www.epgonline.org/viewdrug.cfm/drugId/DR004087/language/LG0001/drugName/LYSODREN-500-mg-tablets



http://www.orpha.net/data/patho/GB/uk-ACC.pdf



http://erc.endocrinology-journals.org/cgi/content/abstract/17/3/797


http://www.endocrine-abstracts.org/ea/0022/ea0022p29.htm



http://www.clinmedres.org/cgi/content/full/7/1-2/48


http://ts-si.org/guest-columns/16784.html

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Support Groups

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  ACCompassion

http://groups.yahoo.com/group/ACCompassion 

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AdrenocorticalCarcinoma: 

   *            http://www.adrenocorticalcarcinoma.com

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        Rare Cancer Alliance: 

 http://www.rare-cancer.org/

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 Planet Cancer:

 www.planetcancer.org


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 If you have a support group to add please let us know at OverComeACC @ gmail.com 

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